Thursday, September 04, 2003

Well, this has certainly been a crazy week. After Rory was hospitalized and did get dialysis on Monday, we expected him to have surgery on Tuesday. Well, that didn't happen, but that was due to lack of an operating room to do it. So, he was scheduled for Thursday. In the meantime, he had a cardiac catheterization scheduled on Wednesday (we had scheduled it previous to all of this). Everyone agreed he needed the catheterization immediately.

So, Wednesday morning, they shipped him off to another Kaiser facility to have the test done. They took him by ambulance. He had the catheterization, which showed no major changes from 2 years ago. That was actually good news. We hope that this means he is still transplantable (Hey, anyone at UCSF reading this??? PLEASE TRANSPLANT HIM! He deserves the chance to see his kids graduate from high school... He deserves the chance to walk his daughter down the aisle when she marries, and they deserve the chance to have their dad around...). He has now been waiting 8 years for a transplant. 8 LONG YEARS. August 3, 1995 was the date that he was first listed. And he has done everything that they told him to do, but still, no transplant. His doctors at Kaiser have said they are going to be contacting UCSF and try and get them to "re-activate" Rory, and credit the time that he has been waiting. Without a transplant, I don't know that he will last much longer. He is truly running out of places on his body that they can dialyze him. And unlike livers and hearts, when you can't get dialysis, it isn't necessarily going to result in a transplant. A lot of people die each year waiting for a transplant because they can't be dialyzed.

Today, they put in a new catheter, in the same place as before, but "buried" much deeper, so hopefully it will work. He is dialyzing as I write this... here's hoping (and praying).

Still looking for another house nearby also!

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