I know its been a while since I last posted... sorry. Things over the last month have left me extremely tired, and my blog, well, it didn't get the attention it deserves.

First, I ended up with a serious bleeding problem due to depo provera (which I was taking to avoid having my period... oh well). Although the bleeding hasn't ended, it has slowed down, so I hope my body will pick up the pace and replenish those missing red cells (my hematocrit got down to 30)!

Second, we are STILL WAITING for transplant to even call us back, just to let us know whether or not they have re-activated Rory. At last check, they had told his nephrologist that they would be doing the urethral reconstruction at the same time as the transplant surgery, but they have been extremely quiet this past month. The nephrologist is trying to get an answer from UCSF, since they have had the results from the aortogram for some time now.

In the meantime, Rory is now on dialysis 5 days a week. I don't even think that is enough, since the catheter isn't working well at all. He is starting to show signs of uremia (nausea, for example) now, along with being sleepy a lot.

More to come as soon as we know more.