GREAT NEWS!!!

Today was going to be Rory's last infusion of sodium thiosulfate (according to the discharge orders). His docs kept giving us a run-around, referring to each other to make a decision. It was really frustrating us unbelievably. Well, I started to really make waves at member services (I had been there twice already about this). It seems that around this time, his docs got their heads together and decided to go ahead and allow Rory to keep getting the sodium thiosulfate for the next 6 months at the infusion center, AND to replace his midline catheter with a PICC line (lasts longer). We were not going to let them pull the midline until he got a PICC line order, since this is also Rory's only IV access - he is a DAMN HARD STICK.

The PICC goes in on Monday. They took out the midline on Thursday to give his arm a chance to rest, in the event they have to use the same vein again (Remember his access problems? Same issue here, too). He will get the sodium thiosulfate at that time also.

To his docs (If you are reading this): Thank You! We realize that you may not agree personally about this medication, but it does appear to be working.