Rory is still in a lot of pain. Last night was rough for him, as he needed morphine just to get sleep (get away from the pain). He was dialyzed early this morning, and shortly after starting dialysis, his pain jumped up to 7 out of 10 on the pain scale. So, more morphine. Which knocked him out. Another doctor has us trying capsaicin cream on the calciphylaxis area on his belly (why, we really don't know - it has never been shown to help calciphylaxis pain), and frankly, I am concerned it will harm his skin. But, we are doing it every 4 hours around the clock. It burns like hell, and is only increasing his pain.

We are still trying numerous avenues to get Kaiser to wake up and realize that they are not helping Rory, but are hurting him.

I am going to an appeal meeting this coming Monday (I have to drive all the way to Oakland - more than 100 miles). Why they can't hold these near the patient is beyond me. "Lets just make it as hard as we can for them to represent themselves". At least that is the way it seems.