Well, we sit here waiting, while Rory is hurting more and more. He is now taking narcotics for pain, when we feel he should be getting treatment instead. Oh yeah, none of his doctors is documenting the progression of the calciphylaxis. We tried to see his nephrologist. No go... she did call me back, though. Calls to his primary care physician are unanswered. We feel at this point that they have written Rory off, rather than provide him the care he needs. Their only response: "Well, if the pain gets bad enough, go to the emergency room". Nice. How about competent medical care?

I did get a call from the "Expedited Review Department" manager, who *seems* to be siding with us. We'll see.